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Diagnosis vs. Eligibility:
What is the difference?
This article was recently
published in the
Autism Interest Group of ABA's Newsletter
The issue of Diagnosis vs. Eligibility comes up
from time to time. It is very frustrating for parents because, in my
experience, neither the schools nor the physicians do a particularly good job
of explaining either and none do a good job of explaining both. I must
say that as a clinical psychologist starting out years ago consulting on
school issues the question of Eligibility and all the issues relating to it
was very confusing for me. After having participated in hundreds of IEPs
over the past 10+ years and having done many ASD evaluations I can say that
most often confusion on this issue arises from miscommunication.
To diagnose ASDs in Georgia one needs to be either a Licensed Psychologist or
a Physician. Since nearly none of the school systems in Georgia employ
either it is nearly impossible for them to have diagnosed a child with an ASD
(or to offer an alternative diagnosis). What schools do is determine
Eligibility via the IEP Committee process. Just as the schools can not
diagnose legally - physicians and psychologists can not "order" or
dictate eligibility to the schools. The two are distinct and have
completely different meanings and purposes. A child can hold a
legitimate diagnosis of Autism and not have the Autism Eligibility.
Usually the alternative is SDD. While I know many have expressed
concern with that eligibility it remains a legitimate Federally defined
eligibility category that quite often a child with a diagnosis of Autism
qualifies under according to the regulations. The debate over the use of
SDD as an
option is a political issue that is outside the scope of this article. The functional
question is whether or not the child is receiving appropriate services to
meet all their identified needs.
The schools charge is to determine a child's needs and place them into an
eligibility based on the identification of needs and services appropriate to
meet those needs. Remember, a diagnosis is a label that covers thousands of
people none of whom is the same as your child. A diagnosis of Autism (or
any ASD) alone is never sufficient to determine what combination of services a
specific child actually needs. This means that often when given a
diagnosis by a pediatrician or other physician they have insufficient
information in the report (often just a letter) to meet the school's
obligation to identify all the child's needs. The schools answer when
confronted by insufficient information is often to provide an evaluation by
their staff. One issue that arises when this offer is made is that many
school staff do a poor job of telling the parent that this does NOT mean they
are 'rejecting' the diagnosis offered - which leads to misunderstandings and
mistrust. It can mean that they need a great deal more specific
information to provide appropriate services on an ongoing basis than they were
provided with by the physician. It has been my experience that psychologists
can also provide reports with insufficient information but this seems to have
occurred less often in my experience - principally because we conduct testing
and usually offer more than our diagnosis based on an interview with parents
and a single limited observation. The bottom line is that very
specific and clear information on the nature of the child's needs, skills,
deficits, and strengths is absolutely essential to developing the best IEP
possible. By doing so the chances that the child will benefit from the
services offered by the school increase dramatically.
If the school conducts their evaluation(s) and makes recommendations this is
the point at which clear and penetrating assessment of the nature of the
reports is essential. If the parent reviews the reports (which
must be provided to them AND the person that wrote the report and conducted
the evaluation must offer to explain the contents) and finds it does not
adequately reflect the issues that they see in their child they have the
absolute right to contest the information and request an Independent
Educational Evaluation (IEE). This means that you and the schools must
agree on an independent professional who has the appropriate training and the
legal right to independently conduct the evaluation that you are asking for on
your child. The essential idea is that the person doing the IEE is paid
for by the schools (like how your insurance company pays your physicians) but
that they are working for your child (not for the parents). Again, the
idea here is to provide clear and comprehensive information on the needs
of the child so that the adults can agree on what the child needs and how to
proceed with providing the indicated services.
I hope that this helps. I hope that this note may help some who are as
confused about the differences (very real ones) between diagnoses and
eligibility as I was years ago. If I can answer any questions on this
topic please contact me.
Robert W. Montgomery, Ph.D.
Director, Autism Spectrum Assessment Program
Licensed Psychologist & Board Certified Behavior Analyst
P. O. Box 1572
335 Parkway 575 - Suite 220
Woodstock, GA 30188
http://www.behavior-consultant.com
(770) 591-9552 - (800) 218-8249 Fax
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